Type 1 diabetes symptoms stories, Tell your story - Coeliac UK


Tell your story - Coeliac UK

Tell your story Mosó seb cukorbetegséggel your story Telling your story is such an important part of our work. It helps us raise awareness by sharing your experiences and your story with people who might be experiencing the same thing.

It can have impact through the media, on our website or our social media channels, so that others can see what you're experiencing and see similarities in their own experiences. This was quite an experience, as I'd never done anything like this.

I was also recently interviewed by Asian Voice magazine to help spread awareness to the Asian community.

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I cannot put into words the satisfaction I got helping to raise awareness about the condition and sharing my experiences to help others.

Men tend to soldier on suffering with symptoms as if everything is normal. I'm not usually the type to openly speak about my life struggles but it has helped me to speak about my condition and would encourage more men to do the same and get involved with Coeliac UK. Although being a case study may not be for everyone, I would certainly recommend it!

Ideiglenesen le vagy tiltva

It can help build confidence talking about it and the challenges faced both physically and mentally. Who knows, sharing your story, your experiences and knowledge could help someone you least expect - children, adult or even the elderly and help them learn about the symptoms or about the challenges of living on a gluten free diet for life.

We wanted to be able to reach out to people, to let them know that they're not alone and that others have gone through similar experiences. Coeliac disease affects type 1 diabetes symptoms stories in different ways; to find a real life case you can relate to is at least as valuable as a list of symptoms. Reassuringly it puts a human face on the medical information.

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We are keen that diagnosis rates and times improve. Public awareness of coeliac disease is slowly improving, and we hope to help this in a small way. As myself Julia and two daughters who both have coeliac disease, speak English and Welsh, we can do interviews in both languages - two for the price of one! We've also had our family story featured in in the South Wales Echo newspaper.

The girls are both studying drama and doing media interviews is a great experience of public speaking.

Useful links

It has been good for them to "give something back" in hopefully being a part of helping others to get diagnosed. Everybody's experience with coeliac disease is different. The more numerous and varied stories published, the more different people will be able to relate to them. Being a media case study is very enjoyable and highly recommended!

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We've learned along the way a little of how the media works. Sometimes interviews have been cancelled, or been recorded and then not used, but hey, that's showbiz! We know now not to expect anything until we actually hear or see it, and to not mind too much about this.

Finally, interviewers will ask lots of questions, then only use small snippets. You have to be willing to be heavily edited and, like a politician, to get your key messages across, whatever the question.

'Sense of responsibility'

That way it's difficult type 1 diabetes symptoms stories them to completely lose your point on the cutting room floor! I thought there might be other people around my age who may be experiencing the same symptoms and I hoped to spread the message to as many people as possible that you are never too old to get a diagnosis!

Media caption, Robin is programmed to act like a child with diabetes to help youngsters with the condition A robot is being developed to mimic a diabetic toddler to help children recognise symptoms of the condition.

I also wanted to encourage health professionals to consider coeliac disease as a cause for long term symptoms. Shortly afterwards, someone from the charity arranged a time to call me for a chat so I could discuss my story in more detail and also the kind of media opportunities I would be happy to be involved in.

Vijay Patel

It was all a bit of a whirlwind for a few months! However, I was really glad that I did put myself forward to be a case study as I feel that I achieved something positive and it made me feel useful and that I might be helping other people learn a bit more about coeliac disease.

I would certainly recommend it as a worthwhile endeavour, a way of giving something back to Coeliac UK and hopefully encouraging people to go and ask their GP to be tested. At first, I set up a gluten free blog page on Instagram called GlutenfreeTash, which I absolutely love. Shortly after, I was called by someone at Coeliac UK to discuss my diagnosis journey and find out what kind of publications I would be happy to be featured in.

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It was so exciting!! This was amazing as the paper is so well known. It was a great place to raise awareness as so many other case studies were featured struggling with their own battles.

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So it felt the right place for me to be sharing my own battle with coeliac disease. I thoroughly enjoyed the whole experience being able to talk about my struggles pre diagnosis and now living with coeliac disease. Life was not easy before, so I hope talking about my story and raising awareness will help people relate and for those close to people with coeliac disease to understand what we go through.

I would definitely recommend being a case study - my experience was brilliant and I enjoyed every minute of it! I was so well looked after, and my feelings were always taken into consideration. I loved how something so negative in my life has been turned into something so positive.